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My wife was diagnosed with Parkinson’s Disease at age 62. She had severe calf pain, muscle pain, tremors, slurred speech, frequent falls, loss of balance, and difficulty getting up from a sitting position. She was put on Sinemet for 6 months, and then Siferol was introduced and replaced the Sinemet. Neither standard treatment did very little for her. We tried different supplements that didn't work, so last August, our family doctor started her on the PD-5 protocol—the best decision ever! 2 months into treatment she improved dramatically. At the end of the full treatment course, the disease is totally under control. Cases of muscle weakness, constant twitches and tremors eased. My wife has resumed her daily activities. As I share this experience, she’s active again. I’m surprised a lot of PWPs haven’t heard of the PD-5 protocol. We got the treatment from their website, uinehealthcentre. net, or by Googling Uine Health Center
Thank you for sharing your story. My husband is 77 and is experiencing hallucinations and non-logical ideas along with Parkinson's motor symptoms. The dilemma about anti-psychotic drugs and Parkinson's medications is real. I need to make plans and decisions while also trying to live in the present. Your comments are helpful!
Thank- you for your recounting of your situation. My mother has gone from a lively loving wife, mother, friend and family member to a person living in a web of psychosis. The Parkinson's diagnosis was made when she was 89. She is now 90. The slip from functional to non-functional has been so rapid ( even with medication) that it is startling. My father , through patience and kindness has cared for her with my assistance over the past year, but we recently hired a lovely young lady to help 3 evenings a week. I am a nurse and work hours away from my home. Ironically, I care for geriatric patients experiencing exactly what my mother is diagnosed with, as well as other critical illnesses. I have loved being a nurse for 45 years. But all of my knowledge and experience cannot keep me even keeled with my mothers illness. Yes, she is hallucinating and delusional and over the past 2 days she has not had a minute of any sense of reality. 2 days ago she saw her neurologist and was able to tell him what day/year it was and could spell the word "world" backwards. She has had episodes of bizarre behavior over the past year, but now it is her norm so we have started giving her an anti psychotic medication. I hope it calms her for my father's sake even more than for her sake. He, is wearing down, as he is not a clinical person, but a logical one and there is no logic ( cause and effect) to understand this. We are close and have had many talks. He does have some short term memory lapses, so he often forgets what I have told him but he is always ready to listen and act on advice. He is slowly coming to the understanding that she will not recover and is not like his 'bride', as he calls her, of 70 years. It is heartbreaking to watch him. Because it has been a good marriage of caring and love with a hefty side dish of humor, he cannot fathom how this has happened with such severity and suddenness. I don't know what the immediate future holds, but I do know that you are so correct in "living in the here and now" - not planning ahead nor looking back. To think about either side of the present reality is emotionally eviscerating . I am sure you felt like you were living in an alternate reality as I do and as my father does. Again I thank- you. You have allowed me to feel better for this 10 minutes. And your words have given me a "hug" of support.
Excellent information for caregivers and receivers. Very few people understand the psychosis factors and it takes a reall effort and understanding to deal with it.
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By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington.
Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services.
APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid.
We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour.
APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment.
You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints.
Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights.
APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.
I agree that:
A.
I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information").
B.
APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink.
C.
APFM may send all communications to me electronically via e-mail or by access to an APFM web site.
D.
If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records.
E.
This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year.
F.
You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
4 Comments
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A Spouse’s Experience: Caring for a Loved One with Parkinson’s Disease Psychosis
I don't know what the immediate future holds, but I do know that you are so correct in "living in the here and now" - not planning ahead nor looking back. To think about either side of the present reality is emotionally eviscerating .
I am sure you felt like you were living in an alternate reality as I do and as my father does.
Again I thank- you. You have allowed me to feel better for this 10 minutes. And your words have given me a "hug" of support.
With gratitude,
j